people living with ALS

Will EXPERTS-ALS be open to everyone living with MND? 

No. Some people’s MND progresses at a significantly slower pace than average. Although good for those individuals, their blood NfL marker may not be high enough to be able to detect a significant change in response to the drug being tested. Some people may also be intolerant of some of the drugs being tested. 

When will it get started for patients? 

EXPERTS-ALS is the largest logistical undertaking of its kind in MND in the UK. The first participant was recruited to EXPERTS-ALS on 22nd November 2024. We are currently allocating participants to one of the first three drugs to be evaluated. pwALS who are interested in taking part should speak to their treating neurologist, who will refer them to a participating EXPERTS-ALS centre if appropriate. 

You can find the current progress of EXPERTS-ALS here. 

Are there other trials I can get involved with? 

There are a number of clinical trials recruiting throughout the UK. Information is available at the following places: 

UK MND Clinical Studies Group

MND Association